ECRD 2026: Rare Diseases in a Changing & Competitive Europe

Conference Details

Date: 03 June 2026

Time: 08:00

Duration: 2 days

Location: Prague, Czech Republic and Online

Cost: € 65 - € 1290

Organiser: EURORDIS - Rare Diseases Europe and Orphanet

Conference Website

Conference Description

ECRD is the largest, patient-led policy-shaping conference for rare diseases in Europe. The event is an instrumental tool for advancing policy objectives that improve the lives of people living with a rare disease. The overarching title of ECRD 2026 is: Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases. 

Rare disease research has long driven breakthroughs in more common conditions, reinforcing Europe’s role as a global leader in biotechnology and precision medicine. Investing in this field is not only a moral imperative - it is a strategic move to boost Europe’s competitiveness in the life sciences. This is especially crucial in the context of the deployment of the Life Science Strategy and of the adoption of the Biotech Act.